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Dirty Laundry Blog by Jennifer Hynes

  • Where do i go from here?

    May 26th, 2019

    The ocean waves crash, I don’t feel well this morning. The food situation has been difficult. I love vacations but with little kids vacations don’t feel like vacations. There are moments, like yesterday morning during our walk on the beach. It starts out all four of us, but Fiona immediately sits down on the sand. She wants to make a nest. We find rocks for birds. I draw little birds on each rock with a piece of burnt wood I use as charcoal. Fiona tells me to gather sticks for the nest as she makes a mound of sand. I gather the sticks. I set the nest up, but Fiona says, no that’s not how. She rearranges the nest in her own vision. Jack and Alan are no where to be seen. They don’t have very much patience for constant stops along the shore.

    I don’t know how to move on from here, but I know I just will.

    Yesterday afternoon Jack, Fiona, and I went in the pool that belongs to the condos we are staying in.

    Goosebumps covered Fionas legs. Her lips purple. But she stayed in and swam. At first without the floaty. Later I made her put it on because she’s still very scared in the water.

    I told Jack he could probably pass the swim test at the big pool. He does cannon balls over and over again. He’s a strong swimmer. He practices going under water and holding his breath as long as possible. He understands how to float.

    When we first arrived at the pool I told both kids we needed to practice our sign language. Once I take off Fionas HA’s she has trouble understanding anything and yells super loud. At first she tries to be quiet, I use sign, she still talks, and gets louder and louder. Fiona wants me close to her the whole time we are in the pool. I try to explain I need to keep swimming, back and fourth to stay warm. I try to sign it many ways but she doesn’t quite understand.

    Jack keeps doing cannon balls. As he climbs out of the pool his legs look more like a boys legs, not a toddler, not even a five year old, like he is. He rushes to the deep end ready to do a cannonball. Not a bit of hesitation in his face. I stop him and tell him to go to the middle part, the 4 and 1/2 feet part. Even though he probably would have been able to do it. I still get nervous with two kids at the pool while I’m alone.

    I think the pool situation wore me out. The impatience of people in general, even people close to me, in contrast to the patience I’ve cultivated in myself.

    To know that there are many situations where my daughter will need patience from others to communicate with her, to stop and make nests in the sand, to wait for her and make sure she knows whats going on when plans shift.

    I think the difficult part for me to understand is that it took me so many years to cultivate this patience in myself. It took me years to learn to slow down and to take the time that needed to be taken with Fiona.

    How can I expect teachers, students, and adults to have the same patience? People who have no training. When even the people closest to me do not have this.

    I don’t know where to go from here.

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  • Ocean Blue Horizon

    May 25th, 2019

    I’m looking out at the great big blue pacific ocean. We are on our vacation, this time we headed south to Aptos. Our usual route is North to Mendocino. Its nice to be by the coast, to hear the waves crash, rumble below. I don’t want to get back into my car, I don’t want to see people or go to the Santa Cruz Beach Boardwalk. I just want to sit in the vacation house or sit on the beach.

    My whole world became clearer last week. With our visit to CSD and connecting with a whole big world Of people who have gone through and understand everything I have been thinking and going through the past five years. Imagine, all this time, all the things I wrote and said about my daughter and sign language, only a couple of close friends understood, one deaf, two Fiona’s DHH teachers who believe in sign language, although they use SEE sign. But that was OK, it was amazing and I am so glad we had that support. But that’s it. And now I have confirmed what I’ve been saying all along, Fiona and my family need to know sign. Beyond that even Fiona’s best friends need to know some for times when hearing aids don’t work.

    Yesterday when I picked up Jack at his preschool, Fiona and Jack ran ahead of me and opened the gate. The head teacher was in the play yard and told Jack and Fiona to come back in the gate and wait for me. When I got to the gate the head teacher started telling Jack and Fiona that it was very dangerous, they could get hit, they had to wait for me, ect. She was about 12 feet from us. Fiona stood there sucking her thumb and holding her tiny. I asked if she understood what the teacher said and she “no”. Fiona heard nothing. This teacher has been trained by Fionas itinerant teacher. This is the preschool Fiona has been attending two times a week getting ready for mainstream kinder. I couldn’t believe that the head teacher could still be oblivious that there was no way Fiona could hear any of that important safety information from that faraway. And through a gate.

    Questions were:

    Is the head teacher that oblivious she didn’t consider she was talking to a child who was hard of hearing?

    Did she think Fiona could hear her?

    Even after knowing Fiona for so many years?

    How much is said at that school to Fiona that they think she understands/hears but really doesn’t?

    And is it hears or understands? What terminology should I be using when describing these situations?

    And if this still happens at this school, something like this would never happen at Fionas early intervention TC preschool, how likely is it to happen at her mainstream elementary?

    Adults constantly talk to Fiona and think she’s ignoring them. I used to say, “she can’t hear you” or “she has hearing aids” , but I kind of stopped doing that lately.

    Our drive to Santa Cruz was long, only because parts were packed with traffic, but Fiona is a great traveler. She keeps herself busy and doesn’t get car sick. I thought if she did choose to go to school where everyone is deaf/HH and uses sign I think a long bus ride might be ok for her? I think she could handle it.

    I hope we can figure out a way to add the support/ education Fiona needs at our neighborhood school. I really do. But I want more people in her world to learn sign. I think they should pick some kids in her class to learn. I think there should be ASL education and support built into the day and classroom. I really think there should be support for the whole family to learn ASL. Maybe thats the movement. Because currently, from my experience and it sounds like most deaf/HH people and educators experience ASL is not accepted or encouraged in mainstream classrooms or in general. It makes no sense.

    The waves just came back into my consciousness. Jack and Fiona are still asleep. I wish we could all use sign all day and have a quiet time by the ocean.

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  • A journal: 20 Days during the Pandemic. Getting back in the studio. Daily Writing and Studio Practice September 21st to October 10th 2020.
  • Blog
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  • My Peloton version 2
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  • Random Tips for twin parents

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