Our voices get muffled, buried, silenced, pushed aside. I push my own voice aside which causes me to exist on the fringe. It leaves me right where I came from, feeling like my inner powerless child. Existing as my own inner powerless child, voiceless, surviving. How my child, head in hands, traumatized by a most restrictive environment. One that prevented her from forming deep relationships, made her inner powerless, overwhelmed child come out. Her voice taken. I was told she had to come to school everyday even if she cried and pulled my legs as I dropped her off.
I called out loud for a change. I listed every obstacle, everything that would have benefited my daughter, would have opened the door to full participation at school in a mainstreamed environment. That would have given her inner power and trust in her own voice. That would have given her fair and equal access to education. We are not powerless. Sometimes I feel powerless.
But, after all these years I am not crying over Fiona’s IEP and difficulties around mainstreaming. I feel that the course I’ve taken has only taken me so far and it’s time to push on. There’s no more time to waste. My voice needs to be heard, Fiona’s voice needs to be heard loud and clear. We are learning how to do that. There needs to be a change in DHH mainstream education. During the pandemic, the barriers to education that normally exist for DHH students are amplified. The isolation from masks and social distancing make communication impossible in the outside world. I think this is a National Issue.
Today was the first day since March 16th that I bought a bunch of junk cereal, mango tango, fresh strawberries and milk that was delivered at 8:30 AM from Safeway. I asked the kids for help putting away the groceries, they gladly obliged, I let them make their own breakfast and watch u-tube while I went to my studio and painted for three hours. Half way through Jack and Fiona came down to my studio. I had pre-emptively set up painting spots for each of them. They started painting with no obstacles, no barriers, no self doubt. Even Jack gave himself a compliment as he pulled a monoprint, “I’m good at this” he said. Can you imagine the joy in my heart. Plus the fear of school. Now that I’ve crossed the bridge back into my studio how can I stop? Now that my kids minds are turned on to barefoot wake up when you want freedom how can we cross back to boring virtual elementary school. A new online system that to children feels like a punishment. How can I parent effectively and teach my children how to behave well, how to practice writing, reading, math, science, art, geography, and how to treat others. The days ahead will be filled with bribing, star systems, all day interruption’s, not leaving time to transition the kids from one activity or online session to the next activity and online session. Setting up Fiona’s equipment takes 15 minutes at least. Getting Jack to sit in front of the computer takes 20-30 minutes of crying and hiding and yelling and bribing. When I could use the time to do a Printmaking lesson or a Lesson on Civil Rights or Write a play. We could spend the day outside making mud pies and talking about measurements.
I will always have to deal with Jacks Oppositional Defiance Disorder, I really think that’s what he has. Fiona needs things repeated and signed. She needs eye contact and to see the whole face. It’s so hard to believe What’s happening right now. I think things are so hard right now learning should be a wonderful escape. My ASL online class through Gallaudet starts August 31st. I’m excited and hope Fiona and Jack will join me any finally learn basic ASL. It could be part of the kids curriculum.
Things have been improving with accessing my creative bravery. In some ways the failure to start a DHH virtual or in-person class for Fiona and other DHH kindergartners and First graders taught by a trained DHH teacher has been a good push for me mentally. I am finally done second guessing myself and giving in to the school district. The longer I do that the longer things will take to change. I know what I’m saying about Fiona being completely cut off from education unless she has a teacher who was fluent in ASL and knew how to not overwhelm Deaf young children visually on-line is the right way, it’s the way that will come out on the right side of history. From now on I will involve my attorney and my DHH consultant/expert at any IEP or ADR. I’m not doing this by myself anymore. I’m tired of doing and saying the same thing over and over and all they can say is “no” and we need to make sure it’s “Least Restrictive Environment”. But Fiona’s experience in Kindergarten and her experience so far on-line during SIP has been the most Restrictive Environment. So the wording in the law must be changed. That’s where I’m at now. Thank You for giving my the push. Full Steam Ahead.
Just as I predicted Jack made his way onto the Roof. I caught him leap from the Roof to the Shade roof over the BBQ. I saw him get on top of the basketball hoop. I had to pull out all stops. My “GET DOWN FROM THAT ROOF NOW!” needed to be firm and non-negotiable. At first there was crying and screaming at the top of his lungs. Fiona was upset too because she said “If Jack gets to do it I do”. I remember when I was a kid hearing stories of kids messing around on top of roofs and one kid falling. I never saw it happen, but I remember the stories. After I was firm with Jack I told him how much I loved him and that I didn’t want him to die. Jacks an intense kid. I am trying to prepare myself for a turbulent homeschooling experience. I can’t chain him to the desk in front of a computer and force him to participate.
I also found out today a DHH virtual teacher is off the table at this point. Now I have anxiety over Fiona’s education too. Again I will have to fight to get Fiona the education she deserves with equal access to communication. It’s on going, year after year. I’ve hidden a lot of my blog posts about the school district and DHH education and my daughters experience being mainstreamed. Any change takes SO much work. But a silent voice is a powerless voice. An unheard voice is a powerless voice and right now there is no voice speaking for DHH students or even Special Ed students as a whole. No plans have been mentioned about our re-entry into school. It’s gone beyond that. We were told no, no special teacher or program to ensure equal access to communication. This time it’s not a choice though. This one I’m taking to the end of the road, hoping that in the end equal access to education for all wins.